In the media
Tom Addison begins covering Susie Pelly's position as Policy Advisor to the APPG on HIV & AIDS as Susie begins her maternity leave.
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APPG HIV/AIDS and Terrence Higgins Trust Panel EventMonday 23rd January 201718:00 – 19:30
Committee Room 6, House of Commons
Please join the All-Party Parliamentary Group on HIV and AIDS and Terrence Higgins Trust to launch a new report that explores what it means to grow older with HIV in the UK.
The report is based on research carried out by the Terrence Higgins Trust in partnership with peer researchers – older people themselves living with HIV. The report seeks to set out the needs and experiences of this first generation of people ageing with HIV, and the actions needed to ensure that their needs and concerns are fully addressed.
The event will be chaired by Mike Freer MP.
Please RSVP to Debbie Laycock on Debbie.Laycock@tht.org.ukEvent Taxonomy: ReportEvent2017
APPG: ‘People living with HIV are being denied the right to vital services which could lead to a significant public health failure in the not so distant future’
According to a report launched today by a group of cross-party Parliamentarians on HIV and AIDS, vital services for people living with HIV in the UK are under threat because of changes made under the Health and Social Care Act 2012.
The report ‘HIV Puzzle: piecing together HIV care since the Health and Social Care Act’ highlights that changes under the Health and Social Care Act have lead to a fragmentation of HIV services and care leading to:
- Major reductions by local authorities to HIV support services threatening to end this vital aspect of HIV care for good.
- NHS England failure to take responsibility for providing pioneering preventative treatment for HIV.
- Inefficiencies and uncertainty for HIV and sexual health services across the country.
The report recommends four vital changes that the Government should make to ensure this situation is addressed:
1. Clarify commissioning responsibility for HIV support services and ensure they are not summarily cut across the country.
2. Encourage Public Health England to urgently develop a whole-service specification for HIV and sexual health, bringing together the various strands of clinical guidance which already exist, to ensure there is clear, consistent advice available to local authorities, Clinical Commissioning Groups (CCGs) and NHS England.
3. NHS England needs to urgently acknowledge its responsibility for commissioning PrEP and assess it accordingly.
4. Ensure HIV prevention and testing are not neglected in the wake of decreased local authority budgets and devolved responsibility. Tackling late diagnosis is key to improving HIV outcomes.
Chair of the APPG on HIV and AIDS Mike Freer MP said.
“The Government needs to recognise when elements of legislation aren’t working and that is clearly the case with HIV.
What this report shows, is that devolution of sexual health and HIV services to local authorities has created a great deal of complexity for people living with HIV which must be addressed.
It is simply unfair and unwise to allow services for people living with HIV to suffer because of the shortcomings in the Health and Social Care Act.
The logic behind devolution of public health to local authorities was sound, but the Government must act where we see there are adverse consequences. HIV support services must continue to be funded, PrEP should not have been caught up in a legal battle and HIV testing, prevention and treatment must continue to be provided in the most efficient and effective way.”
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The report will be launched in Parliament on Monday 5th December 12pm-2pm
For more information contact: Susie Pelly
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On 2nd November Mike Freer MP chaired the launch of the HIV Prevention Innovation Fund. The fund is providing £600,000 to thirteen new innovative local HIV Prevention projects across England.
Speakers included, Public Health and Innovations Minister, Nicola Blackwood MP and the National Director of Health and Wellbeing at Public Health England, Professor Kevin Fenton.
On 29th June, young advocates living with HIV came to Parliament to meet with APPG members and discuss their views, concerns and experiences of how HIV impacts on their lives – whether that be in school, university or in the health system. Members of the APPG found the meeting extremely useful.
As replenishment of the Global Fund draws nearer the APPG has been working hard to increase awareness amongst Parliamentarians of the important work the Global Fund does. On 12th July the HIV/AIDS APPG joined with APPGs on TB and Malaria to host a reception with special guest speaker Annie Lennox. The event was a great opportunity to get the important message across that the UK needs to increase its contribution to the Global Fund.
On Wednesday 13th July the APPG held its annual AGM to re-elect officers. To make the most of the opportunity we also decided to hold a roundtable discussion on the recent High Level Meeting in New York with the outgoing Minister Baroness Verma, STOPAIDS, AIDS Alliance, Harm Reduction International and members of the APPG.
River Room, House of Lords
The Halve It World AIDS Day event and launch of the APPG on HIV & AIDS inquiry report ‘The HIV Puzzle: Piecing together HIV care since the Health and Social Care Act’
Between 12.00 and 2.00 pm on Monday, 5 December 2016, River Room, House of Lords By kind permission of the Lord Speaker. Strictly invitation only.Event Taxonomy: Events2016WAD
New Zealand House
80, 80 Haymarket,
STOPAIDS World AIDS Day Conference
2-5pm followed by drinks and canapes 5-7pm at the
Impact Hub (1st Floor New Zealand House 80, 80 Haymarket, London SW1Y 4TE)
James Wharton MP Parliamentary Under Secretary of State
Luiz Loures, Deputy Executive Director of UNAIDS,
Divya Bajpal, Director of programmes, International HIV AIDS Alliance,
Anne Aslett, Executive Director, Elton John AIDS Foundation,
Judy Chang, Board member of International Network of People who Use Drugs (INPUD),
Lelio Mamora, Executive Director of UNITAID,
Sanelisiwe Nkomo, a young South African mother living with HIV who is a peer to peer Mentor for Mother to Mothers.
Mark Goldring, Executive Director of Oxfam UK,
Claire Moran, Head of Human Development, DFID,
Christoph Benn, Director of External Relations, The Global Fund to Fight AIDS, TB and Malaria,
Kate Osamor MP, (Shadow Secretary of State for International development),
Mike Freer MP, (Chair of the APPG on HIV & AIDS)
This event is co-hosted by Mortimer Market who will provide HIV tests and medical expertiseWednesday 30th November 9:30am-12pm
Jubilee Room for Parliamentarians only.
9:30am-12pm Parliamentary Drop-In ‘HIV Testing Event and Photo Opportunity’ in the Jubilee Room for Parliamentarians only.
(This event is co-hosted by Mortimer Market who will provide HIV tests and medical expertise)
Also see our afternoon event;
STOPAIDS World AIDS Day Conference 2-5pm followed by drinks and canapes 5-7pm at the Impact Hub (1st Floor New Zealand House 80, 80 Haymarket, London SW1Y 4TE)Event Taxonomy: Event2016STOPAIDS
Chair of the All-Party Parliamentary Group on HIV & AIDS and MP for Finchley & Golders Green, Mike Freer, has said he is pleased that the Court of Appeal has ruled NHS England have the legal power to Commission PrEP.
Following the Court’s decision in May 2016, which ruled NHS England had the powers to fund PrEP, health bosses manoeuvred to block the decision through the Court of Appeal.
Aside from their decision to appeal, NHS England also provoked an emotional response from members of the public and LGBT+ community when they published a press release on the court decision.
The press statement implied funding for drugs that could save the lives of young children suffering from Cystic Fibrosis may no longer be affordable if funds were syphoned off to pay for PrEP.
Commenting on outcome of the appeal case, Mike Freer said: “I am obviously pleased with the outcome of this case. It is a breakthrough and the affect this will have on the lives of those living with HIV/AIDS will be ground-breaking. It will also serve as a preventative measure and properly address rising HIV rates in the UK.”
He continued, “But it should never have got to this point. NHS England should have accepted the decision, and their responsibility, when the High Court ruled against them in May. Even after losing the case NHS England are seeking ways of wriggling out of their responsibility. They should accept they have lost their case and fund this crucial measure, as they fund other important preventive measures.”
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£28,536 - £31,274 depending on experience
As Policy Adviser to The All Party Parliamentary Group on HIV and AIDS you will be responsible for the day-to-day running one of the most active and effective All Party Groups in Parliament. You will have the chance to shape the activities of the group and influence government HIV policy.
You will build the Group’s strong foundation of members, making contact with new MPs and peers across all parties. You will identify and push forward policy priorities through parliamentary campaigns. You will maintain excellent relationships with NGOs, private sector organisations, HIV activists and clinicians, ensuring that the APPG stays relevant and addresses the core concerns of people living with HIV. The role can involve international travel.Person specification:
An excellent understanding of how Parliament works, gained in a professional capacity (eg working for an MP or as a parliamentary officer for a charity/company).
A willingness to work with MPs of all political parties.
Strong academic record
A demonstrable interest in international development and/or sexual health
Excellent written skills – this could be demonstrated by, for example, reports/briefings/newsletters/press releases
Excellent organisational skills, including experience of organising events in Parliament.
Experience of managing a budget
A self-starter - the ability to initiate projects, follow through and work with minimal supervision is essential.
Experience of working for an MP
An understanding of HIV in the UK and experience of policy work relating to the NHS or an understanding of HIV and its impact in the developing world
Familiarity with major international institutions relevant to HIV
Media skills – demonstrable success of working with the media.
Experience of working on Bills
Experience of using new media – eg. twitter.
Main duties of the Policy Adviser
Gathering parliamentary support:
You willinitiate and holdmeetings with MPs of all political parties and develop their support. You will prepare written and verbal briefings for MPs. You will work to ensure the officers of the group are always aware of the key issues for the HIV sector.
You will use parliamentary mechanisms (written and oral PQs, EDMS, debates etc) to raise the profile of HIV in parliament and to push for specific policy outcomes. You will organise meetings for MPs with Ministers and draft letters to Ministers.
You willanalyse political and policy developments and, with the officers, agree policy positions for the Group. You will keep in touch with Whitehallofficials and feed into consultations and other policy development activities.
Cooperation with sector:
You will ensure contact with HIV support groups, so that the voice of people living with HIV feeds into our policy positions. You willmaintain contact with key partner organisations in the UKand international HIV sectors. You will attend outside meetings as required.
With the support of the officers, you will be responsible for raising the running costs of the group. You will be responsible for raising your own salary.
You will maintain the APPG website and twitter account
Publicity and Communications:
You will be responsible for designing and writing all written APPG communications – including when necessary, newsletters.
You will be responsible for all the administrative functions of the group. This includes issuing invitations, organising meetings, booking rooms, organising mail-outs and complying with parliamentary regulations.
You will be responsible for managing the APPG budget and following agreed accounting procedure and record-keeping.
Any other APPG-related duties as may be required by the officers.
To apply send your CV and a brief covering letter to firstname.lastname@example.org, ensuring that you address each essential skill/experience requirement listed above.
For more information about the group see www.appghivaids.org.uk/about.html.
Deadline for applications:
9am 1st November 2016.
Candidates must be available for interview during the week beginning 5th December.
Job Start date:
On Wednesday 11th May the APPG launched the The People Living with HIV UK Stigma Index report in Parliament. Stephen Doughty MP, Vice Chair of the Group hosted the event which saw more than 2 year’s of collaboration between Public Health England and the HIV community, supported by the FPA. The report outlines in detail the stigma that continues to affect people living with HIV in the UK. This is the kind of evidence we need to effectively break down the discrimination that continues to affect people when they acquire an HIV diagnosis
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Committee Room 5
House of Commons
Youth STOPAIDS believe there is nothing more powerful than hearing the true-life experiences of people affected by HIV/AIDS and TB.
That is why every year students from across the globe travel to the UK to speak at different events about their experiences of living with HIV.
The speakers' powerful stories give a unique context to the key issues affecting People Living With HIV throughout the world, particularly access
to affordable and appropriate medical treatment.
Please RSVP to Tabby, the Youth Stop AID Coordinator, if you are able to attend
On the 1st December the All Party Parliamentary Group on HIV & AIDS will host a parliamentary panel discussion exploring the need to reach the most marginalised in order to end AIDS by 2030. The panel will include Parliamentary Under Secretary of State for International Development Baroness Verma, Shadow Secretary of State for International Development Diane Abbott MP and will hear directly from young people affected by HIV, Alexa Dominich, Chan Aye San and Cristian Sanduescu.
World AIDS Day takes place Every year on the 1st of December and is an opportunity to show solidarity with those living with and affected by HIV. It is also an opportunity to reflect on the progress made and the challenges ahead in the response to HIV. This year the theme for World AIDS Day is ending the AIDS epidemic as part of the Sustainable Development Goals (SDGs).
The SDGs were adopted in September 2015 by UN member states to galvanise efforts to meet the needs of the world’s poorest by the year 2030. The final framework outlined in the agreed text contains 17 goals and 169 targets , including a target to end the epidemics of AIDS, TB and Malaria by 2030.
If the aim of ending AIDS is to be achieved the bulk of the progress must take place in the next 5 years and must target those most at risk such as sex workers, people who inject drugs and LGBT communities. The event will explore these and related issues and will be co-chaired by Mike Freer MP, Chair of the All Party Parliamentary Group on HIV & AIDS and Lord Crisp Chair of the All Party Parliamentary Group on Global Health.
Later in the week there will be parliamentary debates in both the House of Commons and House of Lords to debate the UK’s role in meeting the target.
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Committee Room 8, Houses of Parliament
The All-Party Parliamentary Group on HIV & AIDS is hosting a panel discussion to mark World AIDS Day on the 1st December.
The event will focus on the need to reach the most vulnerable and marginalised in society to end AIDS as a public health threat by 2030.
- Alexa Dominich, Fokus Muda Network, CCM representative for key populations. - Chan Aye San, a young woman living with HIV from Myanmar and a member of
Myanmar Youth Stars
- Cristian Sandulescu (A London-based young bisexual man living with HIV and an
- Minister of state for International Development Grant Shapps
- Diane Abbott, Shadow Secretary of State for International Development
The All-Party Parliamentary Group on HIV & AIDS today hosted a parliamentary event to mark the launch of the HIV Prevention Innovation Fund on the 18th November in the Houses of Parliament. The event was hosted by Mike Freer MP, Chair of the APPG on HIV and AIDS with contributions from Public Health Minister, Jane Ellison MP and Owen Brigstock-Barron Public Health England.
The fund is providing £500,000 to seven new innovative local prevention projects. Ahead of the launch Mike Freer MP said “Progress has been made to raise awareness of HIV transmission routes but we cannot afford to be complacent. There are still significant numbers of people engaging in activities that place them at risk of HIV infection and new infections amongst some key populations is increasing. We must innovate to ensure that prevention initiatives are effective and HIV prevention messages reach those most at risk. The launch of the HIV Prevention Innovation Fund is a welcome step towards achieving zero new infections”.
The launch event also included the publication of Public Health England’s HIV in the UK 2015 Report (Part 2) and an announcement on the first National HIV Self Sampling Service which aims to deliver up to 50,000 HIV home sampling kits annually across England.
Notes to editors:
The All-Party Parliamentary Group on HIV and AIDS is a backbench cross-party group of MPs and Peers in the UK Parliament promoting evidence based policies to improve the response to HIV and AIDS. The group is one of the longest running all party groups, established almost 30 years ago. It has a reputation as one of the most effective and respected groups with a track record of advancing the needs of those living with and affected by HIV and AIDS.
• It is estimated that there were approximately 103,700 people living with HIV in the UK in 2014.
• Around 17% of people living with HIV in the UK are unaware of their status.
• There were an estimated 6,151 new HIV diagnoses in the UK in 2014 compared to 6,000 in 2013.
• 40% of new infections were diagnosed late. People diagnosed late have a ten-fold increased risk of death within 12 months.
• There were 530 HIV related deaths in the UK in 2013.
• An estimated 3,360 men who have sex with men (MSM) acquired HIV in 2014 compared to a decade long annual average of 2,600.
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Churchill Room, House of Commons
The All Party Parliamentary Group on HIV and AIDS is hosting a Parliamentary event to mark the launch of the HIV Prevention Innovation Fund. The fund is providing £500,000 to seven new innovative local HIV Prevention projects.
The launch event will also see the publication of Public Health England’s HIV in the UK 2015 Report (Part 2) and an announcement on the first National HIV Self Sampling Service which aims to deliver up to 50,000 HIV home sampling kits annually across England.
The event will include contributions from Public Health Minister, Jane Ellison MP and Public Health England followed by morning tea.
Please contact email@example.com for more information
On the 4th November the All Party Parliamentary Group on HIV & AIDS hosted a productive parliamentary panel discussion exploring the need to address HIV & AIDS to improve the lives of women and girls. The panel included DFID Minister Rt Hon Grant Shapps MP, President Obama’s Ambassador on HIV & AIDS, Deborah Birx, UNAIDS Deputy Executive Director Luis Loures and Luisa Orza, a prominent activist.
Minister Shapps spoke about the great progress that’s been made to date in the AIDS response stating that we should celebrate, but the job is not yet complete. Ambassador Birx highlighted that it is possible to end AIDS by 2030 but the time to act is now.
Mike Freer MP, Chair of the All Party Parliamentary Group on HIV & AIDS who hosted the event, said “It’s encouraging that we’ve been able to bring together this high-level panel and that there’s so much agreement on the importance of maintaining the financial and political commitment to meet the recently agreed target to end AIDS by 2030. If we are to meet this target we must scale up the response immediately”.
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Joint event with STOPAIDSWednesday 4th Nov 20152pm
Committee Room 17, House of Commons
The APPG on HIV & AIDS is hosting a panel discussion with Deborah Birx, US Ambassador responsible for PEPFAR and the Rt Hon Grant Shapps Minister for International Development exploring why an end to AIDS is a crucial step in improving the lives of women and girls.