APPG HIV & AIDS Events

APPG launches inquiry into the impacts of the Heath & Social Care Act (2012)

APPG HIV & AIDS News Feed - 16 October, 2015 - 14:16
Press releasesRelease date: 20th October 2015APPG launches inquiry into the impacts of the Heath & Social Care Act (2012)

The All Party Parliamentary Group on HIV & AIDS has launched an inquiry into the impacts of the Health & Social Care Act (2012) on HIV services in England. The inquiry is in response to concerns raised by patient groups and service providers that the introduction of the act, in April 2013, has resulted in fragmentation of HIV services, blurred responsibility for standards and created geographical differences in service quality and availability.

Implementation of the act resulted in significant changes to the commissioning of key HIV services with responsibility being shared between local authorities, clinical commissioning groups and NHS England. This has given rise to concerns about the practical implications of the Act, including:

• the potential fragmentation of services
• the lack of accountability in local authorities tasked with maintaining treatment and prevention programmes
• the impacts of budget constraints on provision of services
• geographical differences in service quality and availability
• the lack of specialised HIV expertise within local authority commissioning bodies

The inquiry aims to identify what changes may be necessary to ensure the highest quality of HIV services are delivered whilst ensuring that the appropriate bodies have clearly defined budget responsibility and other accountability measures are in place to ensure that public funds are utilised most effectively. Written submissions can be submitted to the group until the 18th December.

Terms of reference and details on how to submit to the inquiry can be found at http://appghivaids.org.uk/sites/default/files/pdf/2015/HSC_Inquiry_TOR_F...

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Dissolution of Parliament

APPG HIV & AIDS News Feed - 31 March, 2015 - 16:31

The current Parliament was dissolved on the 30th March until the 7th May 2015. Until the election period has passed, the All Party Parliamentary Group on HIV and AIDS will not be updating this website or making any public statements.

Penrose Inquiry

APPG HIV & AIDS News Feed - 26 March, 2015 - 12:48

The final report of the Penrose Inquiry into Hepatitis C and HIV acquired infection from NHS treatment was published on the 25th March 2015. The report is unlikely to bring comfort to those infected or to the families of lost loved ones but may at the very least provide an insight into the reasons why this tragedy occurred.

I welcome the apology from the Prime Minister on behalf of the UK government as he acknowledged that thousands have suffered for something that should not have happened. It’s now incumbent on the government to ensure appropriate compensation be paid to patients and families affected. The UK and Scottish governments must ensure that lessons are learned and that the right measures are in place to ensure that blood products and blood transfusions are safe.

Today our thoughts should be with those who have suffered so much since this disaster occurred.

Pamela Nash MP
Chair of the APPG on HIV & AIDS

UK Stigma Index 2015

APPG HIV & AIDS News Feed - 21 January, 2015 - 18:10

People living with HIV in the UK are invited to participate in this study.

The study aims to identify how people living with HIV in the UK experience HIV-related stigma and discrimination, and to describe the ways in which this stigma affects them.

Your participation will provide valuable insights into the experiences of people living with HIV in the UK and provide specific information on the situations in which HIV-related stigma is experienced to inform interventions to reduce stigma for people living with HIV.

Your individual responses will remain strictly anonymous and confidential.
It is an online survey that takes between 20 and 30 minutes to complete.

You can complete it on any device with internet access. Just go to:
http://goo.gl/90qHwd

Access Denied Report

APPG HIV & AIDS News Feed - 2 December, 2014 - 12:29

Report of the Inquiry of the All Party Parliamentary Group on HIV and AIDS into access to medicines in the developing world December 2014

The All Party Parliamentary Group (APPG) on HIV and AIDS announced in February 2014 that it was going to conduct an inquiry into access to HIV treatment in low and middle income countries (LMICs). The purpose of the inquiry was to investigate barriers to the access of HIV treatment in LMICs and to provide an update of The Treatment Timebomb report, which was produced by the APPG on HIV and AIDS in 2009.1 We issued a call for written evidence to a wide range of stakeholders including civil society organisations, universities, government departments and the private sector.

Download the full report. [1.5 MB]

Taxonomy: Reportreport 2014

‘Defining leadership to tackle HIV’

APPG HIV & AIDS News Feed - 20 November, 2014 - 07:51

A World AIDS Day event from the APPG on HIV & AIDS and Halve It

Wednesday 26 November14:30 - 17:30

Committee Room 10, House of Commons

World AIDS Day is the one day in the calendar when people living with HIV, advocates, clinicians, community organisations and policymakers come together to unite in the fight against HIV, show their support for people living with HIV and to commemorate people who have died. Importantly it provides an annual opportunity to review and redouble our efforts to end the risks associated with undiagnosed and late diagnosed HIV.

Join the APPG on HIV & AIDS and the Halve It coalition’s members and supporters on 26 November to demonstrate UK leadership in HIV testing policy and to support all those living with HIV, every day of the year.

Event programme

14.30–15.30
World AIDS Day panel session: ‘Defining leadership to tackle HIV’

  • Baroness Gould of Potternewton (Chair)
  • Jane Ellison MP, Under-Secretary of State for Public Health (invited)
  • Luciana Ber›ger MP, Shadow Minister for Public Health
  • Baroness Barker of Anagach, Liberal Democrats Health and Social Care Team (invited)

Ahead of the General Election in May 2015, this session will give the health leads from each party an important opportunity to define the nature of leadership in tackling HIV after the next election and answer questions on halving late and undiagnosed HIV posed by an audience of experts.

15:30 - 17:30
Parliamentary drop-in: Pledge signing, photo opportunity and sexual health exhibition

  • Meet Halve It coalition members to discuss the importance of HIV testing in the context of wider HIV and sexual health-related issues: HIV Prevention England, MEDFASH, Positively UK, Terrence Higgins Trust, AHPN, NAT, Naz Project London
  • Sign a pledg›e committing to help the Halve It coalition achieve its goals to halve late diagnosed and undiagnosed HIV, through national and local leadership

Please RSVP to Lorna Baxter at info@halveit.org.uk. We look forward to welcoming you on 26th November.

Event Taxonomy: 2014Events

Access Denied

APPG HIV & AIDS News Feed - 17 November, 2014 - 11:14

Pamela Nash MP and STOPAIDS

Monday 1st December 20143:00 – 5:30 pm

IPU Room (off Westminster Hall)
House of Commons

The APPG On HIV and AIDS Report Launch of the Inquiry into Access to Medicines

Invite you to the launch of ‘Access Denied’: Report of the Inquiry of the All Party Parliamentary Group on HIV and AIDS into access to medicines in the developing world December 2014.

Invite you to the launch of ‘Access Denied’: Report of the Inquiry of the All Party Parliamentary Group on HIV and AIDS into access to medicines in the developing world December 2014.

Event Format: Panel discussion followed by drinks reception

Guest speakers include:

  • DFID - Parliamentary Under- Secretary of State
  • Rohit Malpani - Director of Policy & Analysis, Médecins Sans Frontières - Access Campaign
  • ViiV Healthcare – Dr Scott Drummond Purdon Director of Access and Government Affairs at ViiV Healthcare
  • HIV Activist from South Africa
  • Greg Perry – CEO of the Medicines Patent Pool

Pamela Nash MP would be delighted if you could join her for the launch of the APPG’s latest report into Access to Medicines to commemorate this World AIDS Day. Given the limited space available, attendance will be allocated on a first come first serve basis.

Please RSVP by replying to susie.grady@parliament.uk

Event Taxonomy: EventEventsReport

‘No One Should Leave The Clinic Hungry’

APPG HIV & AIDS News Feed - 18 September, 2014 - 09:24
Tues 14 th September 201410:30 pm to 12:00 pm

Grimmond Room
Portcullis House

Public Event Notice

Ensuring the existence of specialist HIV social care, support and welfare services that underpin biomedical interventions, ensure clinical outcomes and maintain quality of life for people living with HIV in the UK

The All Party Parliamentary Group and Counterpoint Policy Alliance invite you to an event to discuss the impact of welfare reform upon people living with HIV.

Chair:
Pamela Nash, MP
Speakers:
Allan Anderson,
Chief Executive Positively UK
Peter Ekakaro,
Advice Services Manager Positive East
Dr David Asboe,
Chair of the British HIV Association
Sarah Radcliffe,
National AIDS Trust
Ministerial attendance TBC

Counterpoint Policy Alliance is a partnership between NAZ Project Positive East and Positively UK

RSVP: Anjie Mailey
Tel: 020 7713 0444
Email: info@positivelyuk.org

Taxonomy: event2014Counterpoint Policy AllianceHIV social carewelfare reform

‘No One Should Leave The Clinic Hungry’

APPG HIV & AIDS News Feed - 17 September, 2014 - 12:26

Tuesday 14th October
1:.00 am to 12:00 pm

Grimmond Room
Portcullis House

Public Event Notice

Ensuring the existence of specialist HIV social care, support and welfare services that underpin biomedical interventions, ensure clinical outcomes and maintain quality of life for people living with HIV in the UK

The All Party Parliamentary Group and Counterpoint Policy Alliance invite you to an event to discuss the impact of welfare reform upon people living with HIV.

Chair:
Pamela Nash, MP
Speakers:
Allan Anderson,
Chief Executive Positively UK
Peter Ekakaro,
Advice Services Manager Positive East
Dr David Asboe,
Chair of the British HIV Association
Sarah Radcliffe,
National AIDS Trust
Ministerial attendance TBC

Counterpoint Policy Alliance is a partnership between NAZ Project Positive East and Positively UK

RSVP: Anjie Mailey
Tel: 020 7713 0444
Email: info@positivelyuk.org

Taxonomy: event2014Counterpoint Policy AllianceHIV social carewelfare reform

Patient empowerment:

APPG HIV & AIDS News Feed - 15 September, 2014 - 12:19

For better quality, more sustainable health services globally

A report by the All Party Parliamentary Groups on Global Health; HIV/AIDs; Population, Development and Reproductive Health; Global Tuberculosis; and Patient and Public Involvement in Health and Social Care

This report takes a global perspective on an issue that concerns us all, wherever we live: whether healthcare is something that is done ‘to’ us or ‘with’ us.

Ill health can be profoundly disempowering, but we should all have the chance to understand what is wrong, be involved in making decisions about our treatment, and take responsibility for managing the parts of our care that we are able to. Providing care in this way isn’t just a vital component of good quality, it’s also essential to the sustainability of health systems for the future. This is as true for the UK as it is for countries where many people never see a doctor during their lifetime.

The NHS has made real progress over the years in strengthening the patient role. Thanks to huge social and technological change, reforms to professional education, the commitment of successive governments and many other factors, the role of the patient is slowly becoming less passive. Still, examples of poor care are not hard to find and in several key areas we have struggled to see any improvement for over a decade.

Download full report

Taxonomy: Report2014Empowerment

HIV And Stigma: The Media Challenge

APPG HIV & AIDS News Feed - 15 September, 2014 - 12:05

The Media Challenge

Huge progress is being made in tackling HIV, yet one fundamental obstacle remains: stigma. It’s clear to all commentators that eradicating the shame related to HIV is a priority; what’s less clear is how you go about achieving this change.

Stigma manifests itself in numerous ways and the result is that many people are reluctant to come forward for HIV counselling, testing and treatment and are much less likely to take the appropriate medication. The stark consequence of this is that incidence rates are far higher than they should be.

In this report, we look at the role of the media. There’s a consensus that the media has an important contribution to make in challenging and changing societal attitudes. And there’s also agreement that the media is not achieving its full potential.

Download the report [198 Kb]

Taxonomy: StigmaReport2014

HIV And Stigma: The Media Challenge

APPG HIV & AIDS News Feed - 5 August, 2014 - 19:17

Tuesday 2nd September 2014
6:00 – 8:00 pm
CPA Room (off Westminster Hall), House of Commons

Key findings from the research will be presented, followed by a panel discussion and a drinks reception. Members of the panel will include:

  • Sophie Chalk, Report Author
  • Garth Japhet , Founder of Heartlines and Soul City Institute, South Africa
  • Winnie Ssanyu Sseruma, HIV activist
  • Anne Soy, BBC Africa Correspondent

RSVP Sophie.chalk@btinternet.com
or register via the IBT website
www.ibt.org.uk
Admission by invitation only

Halfway to World AIDS Day’ parliamentary meeting on HIV testing

APPG HIV & AIDS News Feed - 1 July, 2014 - 18:22

Tuesday 8th July 2014
2:45 - 3:45pm
Committee Room 10
House of Commons

  • Baroness Gould of Potternewton (Chair)
  • Norman Lamb MP (TBC), Minister of State for Care and Support
  • Andy Burnham MP (TBC), Shadow Secretary of State for Health
  • Dr Kay Nolan, National Institute for Health and Care Excellence
  • Prof Jane Anderson, Public Health England
  • Dr Michael Brady, Terrence Higgins Trust

Improving Sexual Health Outcomes for Men Who Have Sex With Men

APPG HIV & AIDS News Feed - 1 July, 2014 - 17:00

Tuesday 8th July 2014
5.30 – 7.00pm,
Committee Room 4A,
House of Lords

Significant and growing rates of STIs and HIV among men who have sex with men currently present a major public health challenge in the UK. Following the publication of Public Health England’s Strategic Framework to Improve the Health and Wellbeing of Gay, Bisexual and other Men who have Sex with Men, the meeting will give particular consideration as to what can be done to improve sexual health awareness levels among this group, enhance the provision of services, and increase the numbers of people being tested.

Please RSVP to Harry Walker
harryw@fpa.org.uk
or
020 7608 5258

Call to Evidence for Access To Medicines Inquiry 2014

APPG HIV & AIDS News Feed - 28 June, 2014 - 15:46

Call for evidence- Access to Medicines in the Developing World

APPG enquiry: Achieving Universal Access – The Treatment Timebomb Part II

Deadline for Submissions is Wednesday 19th March 2014, 9am

Background to the Inquiry
In 2009 the All Party Parliamentary Group on HIV and AIDS conducted an inquiry on the supply of affordable anti-retroviral medicines (ARVS), which concluded that the high price of second and third line drugs for HIV was a major barrier to access to HIV treatment. The report was successful in mobilising political support for the Medicines Patent Pool, and in highlighting the “Treatment time bomb” which exists as people in developing countries switch from first line HIV treatment to more expensive second and third line drugs.

Since then there have been significant developments in anti-retroviral treatment, most notably with the results of the HPTN 052 trial which concluded that HIV treatment can be highly effective in preventing the transmission of the disease. There are also a number of new ARV drugs appearing in the market which will likely represent the future of HIV treatment and access to them will become central in the coming years.

In 2011 World leaders agreed to a target at the UN of putting 15 million people on treatment by 2015. However in 2013 the World Health Organisation changed its guidelines to start ARV treatment at an earlier stage in the illness when a person’s CD4 count reaches 500cells/mm3. This means that an estimated 26 million people should be eligible for ARV treatment, making the 2011 UN target of reaching 15 million people less ambitious than previously thought. Another major development since 2009 is the establishment of the Medicines Patent Pool/

For more information please contact the Policy Advisor to the APPG on HIV and AIDS:
policy.advisor@appghivaids.org.uk
02072195670

Download Guidance for Submissions [218 Kb]

APPG in the media

APPG HIV & AIDS News Feed - 22 June, 2014 - 11:44

London Evening Standard: Sunday 22nd June 2014
Peter Tatchell

The biggest obstacle to tackling HIV is prejudice, says Norman Fowler

"The former Tory health minister and architect of the 1980s 'Don't die of ignorance' campaign presents a call to arms to fund prevention programmes. So are you listening, David Cameron?

Worldwide, 35 million people are living with HIV. Of these, 18 million don't know they are infected. Not surprisingly, there are a staggering 2.5 million new infections and 1.5 million deaths every year. Since the beginning of the HIV pandemic in 1981, 36 million people have died of the disease."

The Independent: Sunday 15th June 2014
Jeremy Laurance

Aids: Don't die of prejudice by Norman Fowler, book review: All a splutter in the shires

"It is Norman Fowler's distinction that he was the longest serving Health Secretary since the Second World War, having held the post for six years from 1981 to 1987. This was when Aids emerged as a global threat and developed into the worst pandemic of modern times.

His survival was remarkable given the turbulent times in the NHS as the money ran out – much like today. His successor, John Moores, lasted a year before being sacked by Mrs Thatcher, who six months later announced the biggest reform in the NHS's history, ushering in the market and competition that remains controversial today."

The Observer: Sunday 8th June 2014
Norman Fowler

HIV remains a global health problem, thanks to ignorance and prejudice

"18 million people have undiagnosed HIV, and it's no surprise given attitudes in countries such as Russia and Nigeria

Are we winning the battle against HIV and Aids around the world? It would be a very brave man who said with certainty that we were. In spite of the reassuring words of some politicians, the position is that worldwide there are still more than 1.5 million deaths from Aids every year and about 2.3 million new infections. But the worst, and most shocking, figures are the following."

Pink News: 4th June 2014
Scott Roberts

Lord Fowler: Fight against HIV going backwards because of anti-gay laws

"Former Health Secretary Lord Fowler says the fight against HIV is "going backwards" because of anti-gay laws in many parts of the world.

Lord Fowler, who served as Margaret Thatcher's Health Secretary until 1987, told BBC Radio 5 Live: "The real problem is that you have got 35 million people living with HIV in the world today, but half of those don't know they have the infection."

Pink News: 24th February 2014
Scott Roberts

EU foreign policy chief slams Ugandan President for signing 'draconian' anti-gay law

"EU foreign policy chief Baroness Ashton has condemned the President of Uganda for signing the country's Anti-Homosexuality Bill into law, describing the move as "draconian".

President Yoweri Museveni signed the bill in front of politicians and reporters on Monday at 1.54pm (10.54am GMT) at State House, his official residence in Entebbe.

He blamed the West over his decision to sign the bill."

Pink News: 3rd April, 2014
Scott Roberts

Former prisons minister: It's 'disgraceful' how the UK Border Agency has handled LGBT asylum cases over the years

"Conservative MP Crispin Blunt and Labour MP Pamela Nash have strongly criticised the Home Office over its handling of LGBT asylum cases.

Yesterday, during a House of Commons debate on how the UK should promote LGBT rights in Uganda, Ms Nash commented on the case of a lesbian asylum seeker who was deported to Uganda last year."

2013

Progress Online: 17th October 2013
Pamela Nash MP

Fighting to keep HIV and AIDS on the global agenda

"HIV and AIDS has been the major health threat of the last few decades, affecting around 75 million people since the start of the epidemic and continuing to affect around 35.3 million people today. For the most part the global response has been a success story. Eight million people in low- and middle-income countries are now accessing HIV treatment, compared to just 400,000 in 2003. However, these successes must be put into perspective.

DailyMirror: 10th October, 2013
By Tom McTague

Theresa May NHS immigration proposals could cost millions and help spread HIV


"Theresa May has been warned her immigration crackdown could cost the NHS millions – and help to spread HIV.

The Home Secretary announced proposals to deny NHS treatment to illegal immigrants.
But the British Medical Association raised fears the move will see migrants avoiding doctors surgeries until they get more serious problems and spread disease - costing the health service millions of pounds more."

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